Tag Archives for " tuberous sclerosis "

Realities of having a child with special needs

The realities of having a child with special needs! This is annual MRI day for our son with tuberous sclerosis. Many hope’s and prayers for no surprises. This is also the day where for a short while I think about the why does he have to go through this, why does there have to be […]

There is No “Normal”

In a matter of 36 hours, our seemingly normal life with our 6-month-old son was turned completely upside down. Has your life ever changed in the matter of a weekend? I remember getting a call from Grandma Jeannie asking me to come home because “something wasn’t quite right.” I rushed home and my son was […]