Realities of having a child with special needs ⋆ Redefine Normal with Wendy Andersen | Redefine Normal with Families with a Special Needs Child

Realities of having a child with special needs

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Realities of having a child with special needs

The realities of having a child with special needs! This is the annual MRI day for our son with tuberous sclerosis. Many hopes and prayers for no surprises.

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Struggles of being a special needs parent

This is also the day when for a short while, I think about: “Why does he have to go through this?”, “Why does there have to be such conditions like this”, “Why on so many levels…..”.

Realities of having a child with special needs

Back to Gratitude

Then I shed a tear or two, and I get back to gratitude…. I have gratitude for a child who is amazing, a wonderful brother and friend, a child who has taught us more about living life and loving more than we could have ever imagined.

The blessings of his sisters who love him for who he is. They take his toys and then hug and love him. The blessing of an amazing hospital in Children’s Hospital & Medical Center and the Tuberous Sclerosis Clinic at Cincinnati Children Hospital with doctors around the world who are working tirelessly to help our kids. They are always developing medical advances that at one time was not possible. We are greatful for the blessing of an amazing organization in the Tuberous Sclerosis Alliance that strives to help our children, families, and clinics all over the world!

We are also blessed with his school, classmates, teachers, paras, and staff at Lewis Central, who are #1 in our book, who love him help him, and challenge him to grow.

Grateful is an understatement when we think about the blessing of our family and friends. Who are always right there with us, loving, accepting, and more importantly, embracing the journey with us.

 being a special needs parent

We’ll always remember

We will never forget the 36 hours that forever changed our lives and the words of the physician. The doctor told us our little 6-month-old child had tuberous sclerosis and infantile spasms…that was 8.5 years ago. This wasn’t the journey we had imagined with our firstborn child, but we are truly grateful for this journey. Looking back we are grateful for our son, daughters, and everyone around us.

Having a child with special needs

We live this daily. For many, the annual MRI day is a reality of ‘Oh yes, Dexter has tuberous sclerosis and our worlds are quite different’. Yet, at the same time, we are so similar. At the end of the day, it’s about love and gratitude for all we have been blessed with, and we couldn’t imagine a life any different.

Thank you to all the amazing people in our lives. You have no idea what each of you mean to us!

Wendy

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About the Author

"The choice was crystal clear in that hospital room. My husband and I looked at each other, and we both knew that we were going to redefine normal. We were going to love our little boy totally, and we were going to navigate through our child’s special needs to the very best of our ability. We were going to find joy in caring for our child, no matter the circumstances!" > Keep Reading...
Wendy Andersen Parent of Special Needs Speaker
Hi! I’m Wendy Andersen, a parent of a special needs child and my mission is to empower other special needs parents to live JOYFULLY while caring for your special needs child!

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