The realities of having a child with special needs! This is annual MRI day for our son with tuberous sclerosis. Many hope’s and prayers for no surprises.
This is also the day where for a short while I think about the why does he have to go through this, why does there have to be such conditions like this, why on so many levels…..
Back to Gratitude
And then I shed a tear or two and I get back to gratitude….gratitude for a child who is amazing, a wonderful brother and friend, a child who hastaught us more about living life and loving more than we could have ever have imagined. The blessings of his sisters who love him for who he is and then take his toys and then give him a hug…an amazing hospital in Children’s Hospital & Medical Center and the Tuberous Sclerosis Clinic at Cincinnati Childrens Hospital and Drs. around the world who are working tirelessly to help our kids and develop medical advances that at one time weren’t possible. An amazing organization in the Tuberous Sclerosis Alliance who strive to help our children, families and clinics all over the world! His school, classmates, teachers, paras and staff at Lewis Central who are #1 in our book, who love him, help him and challenge him to grow. Our family and friends who are right their with us loving and accepting and more importantly embracing the journey with us.
We’ll always remember
We’ll never forget the 36 hours that forever changed our lives and the words of the physician telling us our little 6 month old child had tuberous sclerosis and infantile spasms…that was 8.5 years ago. This wasn’t the journey we had imagined with our first born child, but we are so very grateful for this journey, our son and daughters and everyone around us. We live this daily, for many the annual MRI day is the reality of ‘oh yes Dexter has tuberous sclerosis and our worlds are quite different’ yet at the same time we are so similar…at the end of the day it’s about love and gratitude for all we have been blessed with and we couldn’t imagine a life any different.
Thank you to all the amazing people in our lives, you have no idea what each of you mean to us!
